Episodes
In this short pilot episode, Caitlin and Clarinda introduce themselves and their vision for Not Just Patients.
We are people
We are experts
We are changemakers
We are collaborators
NOT JUST PATIENTS
Hello and welcome to Not Just Patients, a podcast where we have honest and meaningful conversations, sharing powerful stories of patient advocacy, eliciting hope and resilience among patients and inspiring pharma and decision-makers towards stronger patient engagement.
We're your hosts, Caitlin Rich and Clarinda Cerejo. We're both patients with rare diseases.
And we are so much more.
Join us and our guests as we challenge patient stereotypes, highlight successful collaborations in healthcare, and share energizing tales of turning adversity into advocacy.
This podcast is for anyone in healthcare.
Not just patients.
Meet your hosts
Caitlin Rich
Hi, I’m Caitlin and I live with cystic fibrosis, a rare, progressive disease that affects the respiratory and digestive system.
Professionally, I also happen to work in healthcare communications, which has opened my eyes to the complex and inspiring world of patient advocacy and engagement.
Due to amazing dedication from patient organisations, the pharmaceutical industry, and policymakers, I am lucky enough to have access to a drug that has dramatically changed and extended my life.
With a world of opportunities opening up in front of me, I was inspired to do what I could to help others get access to lifesaving care.
In 2023, I decided to combine my professional passion and personal experience and become a qualified patient expert. This is where I met the wonderful Clarinda, and the rest is history…
I hope to use this platform to share inspiring stories, encourage collaboration, and spark discussion. We hope you will join us!
Hi there! I’m Clarinda, and I have neuromyelitis optica spectrum disorder, a rare autoimmune disease of the central nervous system.
I have always been fascinated by medical research and have worked in science communication for close to two decades.
Since my diagnosis in 2010, I’ve found myself bringing my research and science background into my own medical consultations and have been disappointed to find doctors dismissing my questioning approach.
But for all its ups and downs, my journey has been uniquely rewarding because it led me to my purpose — patient advocacy!
As I upskilled myself as a patient expert, I met a multitude of effervescent, relentless advocates and healthcare professionals who will stop at nothing in their quest to create a better world for patients.
I’m super excited to join forces with Caitlin to amplify their voices and bring their stories to you!
Clarinda Cerejo
Contact us
Have an idea for a guest or topic we should have on the show? Or a question or some feedback for us? We’d love to hear from you!
2024 Not Just Patients